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30th-Sep-2009 04:08 pm - Hospitals, doctors and nurses, oh my!
leo symbol

Well, last night I wasn't feeling so good.  I felt wrong and cold and a bunch of other symtoms that I can barely remember now.  So my mom asked if I needed to go to the ER and I said I didn't feel like I could make that decision.  And I really didn't.  I "fell asleep" and smacked my eye on a straw (in a soda) and that "woke me up". 

When we go to the ER, they took my blood sugar and it was off their meters!  They had to send my blood to the lab to find out how high it was.  Turns out, it was in the thousands (it's supposed to be less than 100) and that I had started to drift off into a coma.  So they injected me with lots of insulin and hooked me up to saline.  This happened by 7pm.  By 9 it was 850 and they admitted me.

I haven't been home long.  But I am doing much better (obviously) and I figured I better type this up while it's still fresh so I can look back and remember.  I wish I had written down all the symptoms that I experienced, but frankly, I didn't give a good god damn about it...lol.

I'm tired but I'm a little afraid to sleep, simply because of how close I came last night...which I feel is kinda silly even though I know it isn't.

 



Quote of the day:
Life is either a daring adventure or nothing.  --Helen Keller
29th-Sep-2009 02:08 pm - Harry Potter and the Deathly Hallows
but i need tacos or i' will explode

Harry Potter and the Deathly Hallows is an upcoming two-part 2010/2011 fantasy film adapted from the novel of the same name by J. K. Rowling. It is the seventh and final film in the popular Harry Potter film series. Filming began in February 2009.

The film will be split into two separate parts. Part 1 is scheduled for release on November 19, 2010.[3] Part 2 is scheduled for release on July 15, 2011.[4] Both parts will be written by Steve Kloves, who wrote all but the fifth film, and directed by David Yates, who directed the previous two films. David Heyman and David Barron are producing both parts.







OMG!  2 parts!  Why am I so surprised?  It was a freakin long ass book....but still, 2 parts!  Wow.
death
My great-aunt Virginia died this morning.  I don't really know what to think or how to feel.  Maybe because I just don't feel anything...but I suppose that could just be shock.  Grams isn't really reacting to the news at all.  It's like she isn't aware of it.  Dad just has this lost look and mom called my aunt Judy to pass on the news, since Grams isn't really able too.  My aunt is just as stunned.
3rd-Sep-2009 10:10 am - Update!
leo the lion
Ok, so I had a liver biopsy a week ago, and it still freakin hurts!  The crazy part is that they went through my jugular, which has my apheresis catheder in it...so yeah...pain.

Sultan has whip worm, whatever that is and my little dogs may have it too...so fun fun

Was the maid of honor in another wedding.  Candice was gorgeous!  I wasn't too shabby myself...the best man (Bruce) has a bit of a crush on me...lol

I don't have GVHD in the skin, but sadly enough, still in the liver.  My scaladerma is near to gone, just a bit in my thighs left.  I fit comfortably in my size 5 pants, a little loose now, woot!

I still have hand tremors (bummer) so this isn't gonna be long, in fact, now that I've listed the main stuff, I'm gonna say toodles!


current quote:
"Be kind to Dragonswans, for thou art gorgeous when naked and taste good with Cool Whip." (Dragonswan by Sherrilyn Kenyon)
22nd-Jun-2009 12:00 am - stuff about me...currently...
leo the lion

Do not let your fire go out, spark by irreplaceable spark, in the hopeless swamps of the approximate, the not-quite, the not-yet, the not-at-all.  Do not let the hero in your soul perish, in lonely frustration for the life you deserved, but have never been able to reach. Check your road and the nature of your battle.

The world you desired can be won. It exists, it is real, it is possible, it is yours.  (


*I need another couple of days to finish a chapter.  But soon.

All right.  Bad news first.  I'm gonna have to go to the hospital tomorrow.  Appartently an ingrown toenail is an UBER big deal when you have no immune system and it gets infected.  Blech.

Good news is (depending on who you ask) is that we got another puppy!  Big puppy!  We thinks he's a rott/ sheperd mix...about 7 months old, hopefully we'll know more on his medical history by midweek.  We got him from one of my brothers "lesser" friends.  And the poor thing is seriously malnurished, flinches as the slightest raised voice and is completely terrifies of well, everything.  He'll come up to us and rest his head on the couch, and when we realise he's there, we raise our hands to pet him and coax him on the couch and he hits the floor, tail tucked, and ears plastered to his skull.  He doesn't bed for food, doesn't know what a chew bone is, hasn't figured out how to play with us.  And Zulu is determined to be the alpha, so that's brought on some scrapes between the three.  Simba's taking it fairly well.  We think Sultan is about 7-8 months...more than six but not quite a year.  He's still tripping over his feet.  lol

But getting Sultan was a good thing.  He's an outdoor potty type dog, where as are other two are paper trained,  and since doctor farag wants me walking more, and Sultan needs a potty walk, it works out quite well.  On  that hand...on the other, I have to other dogs to juggle when I take Sultan out, cuz they are just like kids, one gets to do it, they all Want to do it...lol 

And those people that had him before said he was a classic "dumb dog" and I"m wondering if they gave us the wrong dog!  There is nothing stupid about this dog.  He's super smart.  Problem solving smart.  But he's oh so sweet.  So I asked James why they thought that.  The answer: Sultan bumbs and stumbles into walls, doors, counters, chairs, etc.  he trips over his own feet!  I just laughted and told him that's what puppies do.  That Sultan hasn't grown into those paws of his.


Sise wise, Sultan is to Zulu as Zulu is to Simba.  So Simba is definately the runt of the group, though he pleases me by not being a totally submissive.  He may be nicer to Sultan than Zulu is, but he doesn't want to be on the bottom of the pecking order.  We've already had to break up three flights, luckily no damage.  These little skrimishes might have ended quicker if my parents hadn't stopped me from jumping in...though I know that's how it's gotta be.  With all my past and present health problems going on right now, the last thing I need to do is try to separate them.  Though when I fed them earier I smacked the rolling pin on the table (loud enough to get their attentions.  Then I made sure hold on to it in case of problems.  More to separate them, than smack...it IS a rolling pin after all.  But I didn't even need to poke or verbally warn the three of them to be easy, they were all ready doing it.

And they all slept in the same room last night without problems so we're all optimistic about the inter dog relations.


Oh, don't know if I told in my last post or not, but anyway.  I'm not allowed to drive, or (once again) go anywhere without an escort (I can close the bathroom door, but no locking)  IU says better safe than sorry, especially since they can never figure out what's gonna happen next...cuz I"m breaking all the rules, beating my own path, and it's drving us all mad!  Familiy, friends, doctors, nurses, everyone is going crazy because I'm not exhibiting the symptoms for any of my conditions.


On a more positive note...I have shrunk back into my size fives...strange note...I still weight 128...go figure.  Expect that the predisone that I"m on is rearraging my body fat, I'm starting to loose the water weight, and with the scaladerma going into "remission" all that hard skin is slowly gentling it'self out.

They are leaving my on the predisone, I"m still taking cholesterol meds (though they say I'm doing better, but not enough) and I'm allergic to Levimir...so they had to get me something else.  So now I"m giving myself 2 shots, and 4 finger pricks a day(min) and man do those hurt.!

I don't know if it's the sleeping pills I took 45 mins ago, or if i'm just a glutton for........
But as I sit here, I have only one wish.  That the four of us (Crysta, Arwynne, Alimond, and myself) could have one day where we could play like we used too.  When we had the power to do anything.  The belief that we could right wrongs, rescue the "damsel in distress" save the world and marry their hunky princes.  Running around battling demons, back in the days where our biggest concerns were imaginary mosters hunting us down.  Life was so much more fun then and a lot less painful! 

Lindsey and I got into it, and that's really all you need to know about it.  Well that adnd that the ball is in her court.  She wanted me to call her, I called her, she tells me again that I have to call her and that she didn't aswer because she was caring for Kalya.  Which is completely fine!  Baby vs Phone?  Ha  Baby wins every time. And if not the lets call the kiddie cops. (Not that the last sentence actually applies, just me finishing a thought that you couldn't hear cuz it's in my head kind of thing.  I digress, What I wanted to say about those calls is this, I called her and asked her to call me, amoung other things, and she emails me telling me to call her again.

As far as I'm concerned, I did call.  It was ignored for an acceptable reason.  But curtosey implies a return phone call with an explaination.  Not an email.

I hate that she's keeping me from Kayla, but what can I do?

I don't even know.

Well, until the nexrt time I take my sleepers and get online....but I gotta go shove some Novalog (fast acting insulin)
The other one is "normal" and that's Levimir.  So we'll see.

But on a funny/crazy/amusing note:  my hair is curling almost all the way to my scalp, and all the fat that I keep talking about?  It's making it's self comfortable in my chest.  The nurses are taking bets on how big they'll get and when.  arg.  I've asked for 30-40% of the profits and they just laughted.  *pouts*

And just so you know, relying on your parents as child, teen, young adult, is far different from the depedency you are forced to expect in such circumstanse.  I'm so weak right now, my parents have to cut up my food, my hands shake so hard we're afraid that I'll get myself bad and ERERER

And I can't even open the friggin milk!  Which makes my family laugh...cuz it is funny, just frusterating.  I'm just glad that I'm still allowed "private" showers, meaning mom in room, or door not locked.  I feel like I"m back in the hospital, the way my parents take care of me...at least I can still Shower without needing someone to wash my back...



Quotes of the Day

When things go wrong as they sometimes will;
When the road you're trudging seems all uphill;
When the funds are low, and the debts are high
And you want to smile, but have to sigh;
When care is pressing you down a bit-
Rest if you must, but do not quit.

Success is failure turned inside out;
The silver tint of the clouds of doubt;
And you can never tell how close you are
It may be near when it seems so far;
So stick to the fight when you're hardest hit-
It's when things go wrong that you must not quit.


"Don't Quit,"  Author Unknown





Our deepest fear is not that we are inadequate.  Our deepest fear is that we are powerful beyond measure.  It is our light not our darkness that frightens us.  We ask ourselves "who am I to be brilliant, gorgeous, talented and fabulous?

Actually, who are you not to be? You are a child of God. Your playing small doesn't serve the world. There's nothing enlightened about shrinking so that other people won't feel insecure around you. We were born to make manifest the glory of God that is within us.

It's not just in some of us; its in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same.

As we are liberated from our own fear, our presence automatically liberates others."

Marianne Williamson
From her book Return To Love


11th-May-2009 08:07 pm - 6 Months
leo the lion
Today is Emru's 6th month aniversary.  He left us November 11th.  It's hard to believe that he's been gone so long.  And how much can happen in a "mere" 6 months.

-brother got promoted
-sister planned to move out
-sister broke up with fiance for unknown reasons
- me-graft vs host
-me-scleroderma
-me-line in chest, TWICE (they put in the wrong size so they had to take it back out and up in the correct one)
-me-photopheresis (including a variety of problems with that)
-friend had baby (9 lbs, 10 oz, 21 inches, May 8th dob, due date May 3rd, Kayla)
-friend graduating this month
-my cute little dog had his 3rd birthday
-said cute little dog and his partner in crime had their annual vet appt for $380!  but they are both healthy
-ran into a very old friend
-met and (hopefully) helped new cancer patients, old cancer patients, and family of said patients


...


ok so that stuff happened within the past 3 months....and those are just a handful...lol.

But I didn't realize that it's already been 6 months since his passing.  I'm not sure how I feel about not realizing.  It doesn't seem like it's been 6 months, but at the same time, it seems like ages ago.  I feel that way about so many things.  It's one of the few things that I've learned, growing up, is that life isn't black and white.  And how I feel about Emru is one of them.  My leukemia is another.   There's a list, I'm sure.
11th-Mar-2009 02:52 pm - Celebrate!!!
leo the lion
Okay.  Here's some good news!  I now weigh 102.9 pounds!  First time in over a year!  Woohoo!!!   AND I just had a hot bath, I lingered, I soaked, I Enjoyed AND when I got out, I didn't ITCH!!!  The first time I've had a bath (where I didn't itch, I mean) since the end of July 2008!!!! 

The only downside, I think I look fat...lol.  The steroids I'm on placed my weight gain in my cheeks, thighs and stomach.  But on the plus side, when I'm taken off the steroids (hopefully next week) my weight is supposed to even itself out.  And on a bigger plus side, I'm encouraged to eat whenever I'm hungry.  Which is often.  The other day, I ate *two* steaks!  And I was still hungry!!!!  That's *not* counting the baked potatoes (yes plural).  I'm eating six meals a day plus "snacks" which could probably count as their own mean (as in bowls of cocoa puffs, kix, or frosted flakes)...And I'm going through a gallon of 2% milk ever two days!  By myself!

My liver counts are finially dropping, which is soooo gooood....we've been watching them carefully, for the graft versus host disease, and they were ridiculously high!  They are still too high, but they are *half* (literally) of what they were!  They are double what they are supposed to be now.  Can you imagine?




I actually had a thought, yesterday, about gifts.  I was working on some of my house plans (for the Sims 2, I have to downsize all "normal" house plans in order to put them on the game "to scale") and I realised something, I've been playing the Sims, and then the Sims 2 since they came out, I will be playing the Sims 3 when it's finally released, and in all this time, none of my friends have ever bought me anything regarding house plans...though I admit, I've never asked....lol

Then I realised, the same thing applied to my crafting, I crochet, draw, write, paint, color (though I admit to recieving a few coloring books from Amber), bead, sew, do puzzles (crosswords, kriss kross, logic) and I'm always interested in learning a new craft.  But when I look at my list, I can't help but wonder why I don't get some of these things as gifts (birthdays and Christmas).  Especially when people say they don't know what to get me!  So, should I mass email my friends and family a list of my interests?  LOL  I'm kidding.  I'm not going to do that!
8th-Feb-2009 07:24 pm - arielfloress
leo the lion
I'd love to chat, but you have to turn on your message options first.  Or email me, Shalaren@yahoo.com
6th-Feb-2009 12:58 pm - A Year and A Day!
leo the lion

Today is my year and a day from surviving Leukemia and I'm so happy about it!  LOL.

This poem is posted in memory of all those who didn't make it to their year and a day.

I'm Free )
 
Don't grieve for me, for now I'm free
I'm following the path God has chosen for me.
I took His hand when I heard him call;
I turned my back and left it all.
  
 I could not stay another day,
To laugh, to love, to work or play.
Tasks left undone must stay that way;
I've now found peace at the end of day.
 
 If my parting has left a void,
Then fill it with remembered joys.
A friendship shared, a laugh, a kiss;
Oh yes, these things, I too will miss.
Be not burdened with times of sorrow
Look for the sunshine of tomorrow.
  
 My life's been full, I savored much;
Good friends, good times, a loved ones touch.
Perhaps my time seems all to brief;
Don't lengthen your pain with undue grief.
Lift up your heart and peace to thee,
God wanted me now-He set me free
  
AuthorShannon Lee   Moseley.
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27th-Jan-2009 03:39 pm - Orange Ribbon
leo the lion
 Leukemia is a cancer that begins in the blood cells, more specifically white blood cells. It belongs to a broad group of diseases, commonly termed as hematological malignancies. Leukemia is classified into different types based on the onset of the disease and the type of white blood cell informed in the malignant transformation. Acute leukemia is a condition in which there is an abnormal growth of white blood cells in a very short time period. Approximately 6-7 new cases of acute leukemia are diagnosed per 100,000 people in a year. Chronic leukemia is the abnormal growth of cancer
cells, over a prolonged period of time. The most commonly observed forms of leukemia include chronic myeloid leukemia, acute myeloid leukemia, acute lymphocytic leukemia and chronic lymphocytic leukemia. Leukemia is generally considered as incurable. The truth however is that in some instances, a complete cure may be achieved (bone marrow transplantation).


www.medindia.net/ribbons/content_display.asp

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